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Evander, was diagnosed when he was 1 day old with a neuroblastoma tumour. The tumour is located in his chest cavity and was initially compressing his spinal cord from T2-T10.  Due to the size and location of the tumour it was impossible to operate and so Evander completed 6 months of chemotherapy to fight the tumour...     Evanders Story>>

For a detailed account of Evander's first year read the Practical Parenting article on our 'In the Press' page


"Neuroblastoma is the most common solid tumour of childhood. It is almost exclusively a childhood cancer occurring most commonly between the ages of 0-5 years. It is a solid tumour arising from particular nerve cells which run in a chain-like fashion up the child’s abdomen and chest and into the skull following the line of the spinal cord. The most common site for the tumour to grow is in the abdomen. About 50% start in the adrenal gland above the kidney. Some tumours grow at the back of the chest and occasionally even higher up towards the neck.

Neuroblastoma is a rare disease with about 40 children diagnosed with neuroblastoma each year in Australia. There is a chance of 1 in 100 000 of a child having neuroblastoma. There appears to be no trend in an increasing number of cases in Australia.

There are no known reasons as to why this cancer occurs and there are no clear environmental links. There are rare cases where neuroblastoma runs in families due to a genetic mutation, but in most cases there is no known genetic cause.

Neuroblastoma is a very complex cancer and there are many different types that behave very differently.  At one end of the spectrum are benign tumours that may even resolve spontaneously, while at the other end are aggressive tumours with an average survival rate of 40%.  The cure rate for these “high-risk” tumours has only improved marginally in recent years but there is clear hope that this rate will change with some new drug discoveries coming through." 

The above description is from Neuroblastoma Australia for more information on this type of cancer or to make a donation into Neuroblastoma research visit their website