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Evander's Story

Evander, was diagnosed when he was 1 day old with a neuroblastoma tumour. The tumour is located in his chest cavity and was initially compressing his spinal cord from T2-T10.  Due to the size and location of the tumour it was impossible to operate and so Evander completed 6 months of chemotherapy to fight the tumour.

Evander is now almost 5 years old, and thankfully, chemotherapy has removed the tumour’s compression on his spine, but the MRI shows the spinal cord "discontinued" from T5 to T7. The doctors believe that Evander will be paraplegic based on what they have seen. The early testing shows this to be 'complete' although Evander has defied this prognosis with the functional gains he has made. Read about him… In the News 

Evander cannot move his legs spontaneously, but does have some reflexes and responds to external stimulation. He has been undertaking a type of intensive physiotherapy called Locomotor Training for the past 3 years and has made some amazing improvements such as posture, loadbearing in standing and even taking steps while suspended in a harness.

Evander as a child with a spinal cord injury (which is very rare) does not qualify for Better Start early intervention funding from the government, which children under 6 years who have cerebral palsy and other conditions, receive for their rehabiliation and development in these first critical years of life. 

You can see Evander's history over the past 3 years including his trips to Frazier Rehab in Louisville Kentucky on Evander's Facebook page

 

Neuroblastoma

Evander, was diagnosed when he was 1 day old with a neuroblastoma tumour. The tumour is located in his chest cavity and was initially compressing his spinal cord from T2-T10. Due to the size and location of the tumour it was impossible...

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Spinal Cord Injury

" Spinal cord injury (SCI) in children is a rare injury that can result in permanent loss of motor and sensory function, and dysfunction of the bowel and bladder. These injuries result in significant social and ...

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